Families living in rural and frontier communities lack an integrated system of care to deliver services and supports that assure the best quality of life for their children who have epilepsy. They face geographic isolation. Travel outside their communities can be hindered by weather and road conditions, while others are faced with extensive travel, often out of state, to access specialty services. Parents and health care providers have limited opportunities for training and education related to this condition.
What is Project Access?Project Access: Improving Care for Children with Epilepsy in Rural and Frontier Communities is a grant (#H98MCO8579) from the federal Maternal and Child Health Bureau, Health Resources and Services Administration, awarded to the USC University Center for Excellence in Developmental Disabilities, Childrens Hospital Los Angeles.The grant subcontracts with UCEDDs in Alaska and Wyoming, Family TIES of Nevada, CA Children’s Regional Integrated Services System (CRISS), and the Epilepsy Foundation of Northern California.The Epilepsy Foundation Northwest and the Epilepsy Foundation of Colorado also provide support.Two other partners in Project Access also provide support: the National Initiative for Children’s Healthcare Quality (NICHQ) and the Epilepsy Foundation. Please see below for helpful resources.
For more information about epilepsy and seizure discorders, contact:
Upcoming Events
"Living with Epilepsy" Conference - Las Vegas, August 14th
2_Seizure-Action-Plan_v1.pdf
2_Seizure-Observation-Record_v1.pdf
2_FINALNevadaPolicyBrief_Handout.pdf